Our Board of Trustees is the governing body of Spotlight YOPD and is ultimately responsible for everything we do and how we do it. The board directs the affairs of the charity, ensuring that we are solvent, well run and deliver charitable outcomes that benefit people with Young Onset Parkinson’s. Our Charity number: 1165177.  Full details here.

Nicole Susan Cole

Nicole Susan Cole

Chairman

At the end of a long career in Engineering, IT, Education and Health, I am devoting time to my family, friends and a deserving charity, Spotlight YOPD.

Gaynor Edwards

Gaynor Edwards

CEO

CEO of Spotlight YOPD & Co-Chair of YOPD Leadership Group at the World Parkinson’s Congress. Gaynor Edwards is CEO of Spotlight YOPD, a charity representing those diagnosed with Parkinson’s under the age of 50. She founded the charity in January 2016, just a little over three years after her own diagnosis at the age of 42.

Matt Eagles

Matt Eagles

Trustee

Positivity Activist. Proud recipient of the BNA's Public Engagement of Neuroscience Award 2020, Co-Founder and Frontman of Parkylife Finalist at the National Diversity Awards 2020- Positive Role Model ( Disability ).

Bradley Standen

Bradley Standen

Independent Research Writer

Trustee for SpotlightYOPD. PhD Student, Technician and Researcher for the Division of Psychology at Nottingham Trent University. Main area of work focuses on experimental design using Unity, with current work focussing on developing Virtual Reality Exposure Therapies (VRET). PhD contains psychometric, neurological, and behavioural examinations of Reinforcement Sensitivity Theory.

Bethany Lee

Bethany Lee

Trustee

Trustee at SpotlightYOPD. Qualified Psychological Wellbeing Practitioner and trainee Cognitive Behavioural Therapist. Beth has trained in adapting therapy for those with long term conditions and aims to develop materials to make therapy more accessible for sufferers of long term conditions, such as YOPD.

Mark Webb

Mark Webb

Trustee

Financial & Corporate Services leader / Project Manager
Specialties:
- Change Management including:
- Mergers and Acquisitions and post merger integration
- System implementation including Financial Systems, ERP, CRM and Treasury.
- Functional leadership including IT and Facilities, large,small and disbursed international teams.
- Charity Tax, Governance, Risk Management and Strategy

Gavin Jones

Gavin Jones

Trustee

Working with clients and RARE communities to deliver better patient outcomes through bespoke education, support plus access and evidence generation. Every conversation I have in RARE takes my understanding that little bit further forward and I bring confidence and humility in helping you overcome your challenges to collectively make a difference. Always open to connecting with patient groups in the rare disease community to support their activities and inform our solutions.

Shazia Dar

Shazia Dar

Trustee

Researcher Development Administrator at The University of Manchester and Trustee at Spotlight YOPD.

Sally Smith

Sally Smith

Trustee

Sally joined Spotlight YOPD in Spring 2020 and is Deputy Chair for the charity. Sally is a registered nurse. Having trained in London she worked clinically for 21 years in critical care before moving into senior management, including four years as a Chief Nurse. She is passionate about patient safety and person-centred compassionate quality care.

Sally has retired from fulltime nursing after over 40 years in the profession. She is an avid Charlton Athletic FC season ticket supporter, loves cycling, trying to learn the drums and ukulele as well as playing a good game of darts. Sally is delighted to be part of this valuable organisation to make a difference.

Andrew Hobbs

Andrew Hobbs

Trustee

Graduated in 1986 with a BSc Joint Honours Degree in Mathematics and Computer Science, I spent the following 32 years working in the IT Industry.
Diagnosed with Parkinson's Disease in 2014, it soon became apparent that work was not providing much emotional satisfaction, and so in 2018 I left the corporate world to concentrate on my charitable endeavours.
I am a strong believer in complementary therapies, so exercise and diet are crucially important to me as I work hard to keep the PD at bay.
I have every faith that given sufficient motivation, the scientific community will find the solutions to the incredibly complex puzzle that is Parkinson's disease, and am most excited by developments in neurotrophic factors and stem cells in particular.