advocacy

A writer and poet living with Young Onset Parkinson’s shares her diagnosis journey, the role of creativity in coping, and how routine, exercise and advocacy have helped her build a hopeful and purposeful daily life.
Rebecca was diagnosed with Young Onset Parkinson’s at 41 while balancing NHS leadership, motherhood and a busy family life. She shares the difficult decision to retire, how creativity and routine help her manage symptoms, and why openness, community and purpose have become central to living well with YOPD.