Welcome to Our Community

Our online group is a sanctuary for individuals living with YOPD. We all experience the unique challenges that come with this condition, and we're here to support each other, share knowledge, and build connections that make a difference.

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"When YOPDers share, we ALL totally get it…"

Shared experiences

In our community, sharing means more than just telling stories. It’s about connecting on a level where everyone “totally gets it.” Whether it’s discussing symptoms, treatment experiences, or daily life adjustments, our space is dedicated to mutual understanding and support.

Shared experiences

In our community, sharing means more than just telling stories. It’s about connecting on a level where everyone “totally gets it.” Whether it’s discussing symptoms, treatment experiences, or daily life adjustments, our space is dedicated to mutual understanding and support.

Expert insights

Regular Zoom drop-in meetings with experts offer valuable opportunities to learn, ask questions, and gain insights that can help navigate the journey with YOPD.

Making human connections

More than anything, our group is about fostering human connections. A safe space that offers empathy and strength in the company of others who truly understand the journey with YOPD.

Ready to Connect? Visit us on Facebook and become part of a community that’s here to support you every step of the way.

Stay updated

Subscribe to our newsletter for the latest YOPD research, news, and inspiring stories.

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