His story is raw, emotional but one about the importance of finding community, understanding, and looking for the strength within.
“There are lots of people going through what you’re going through, and it is important not to forget that…without the community, I’d be completely lost.” Drew, diagnosed aged 35
Receiving a YOPD diagnosis can be isolating, but it is not something that needs to be faced alone. At Spotlight YOPD, we are a supportive community of people living with YOPD determined to raise awareness and understanding of this not so rare, rare disease.
Want to hear more from Drew? Watch his incredible self made documentary.
Also, read our founder, Gaynor’s story.
How can you get involved?