Latest Posts

Report of the Trustees and Financial Statements 01/04/2024 – 31/03/2025

A snapshot of Spotlight YOPD’s year, highlighting our impact, growth, and how we’re supporting the young onset Parkinson’s community.

YOUR voice: Samantha Cole

Samantha Cole is a Consultant Clinical Health Psychologist, NHS leader, parent, and CEO of Spotlight YOPD, living with young-onset Parkinson’s. In this reflective and honest piece, she shares how she continues to work full-time, adapts her routines, and stays active while living with YOPD. Samantha offers thoughtful insights on medication, family life, identity, and advocacy, giving a calm, human perspective on balancing health, leadership, and everyday life.

A Decade of Impact: January 2026 Newsletter

We’re celebrating 10 years! 🎉 Read our January 2026 newsletter to see how far we’ve come.

Press release: SpotlightYOPD marks 10 years

January 2026 marks the 10th anniversary of SpotlightYOPD. This press release shares the charity’s journey so far, its commitment to supporting people with young onset Parkinson’s, and how the anniversary year will be used to raise awareness, advocate for change, and build momentum for the future.

Spotlight YOPD under new leadership

As of 1st May 2025 Dawn Harding will assume the Chair role at Spotlight YOPD. We recruited Dawn as Chair Elect several months ago as we knew that Nikki Cole would come to the end of her six year tenure at the beginning of May.

Spotlight YOPD: Exciting Opportunity 

Carl Beech has decided to step aside due to the demands of his non voluntary work restricting his available time, we are now seeking our next charity CEO, to build on the change he initiated, could this be you?
Carl with the CEOs of Parkinson's UK and Cure Parkinson's who have united as charities to back the petition.

Resignation of Carl Beech – CEO Spotlight YOPD

Those of you who follow Spotlight YOPD will be aware that under the tenure of Carl Beech as CEO, we have undergone significant growth and change. It is therefore with some sadness that I have accepted the resignation of Carl Beech as CEO.

The YOPD Times

Our CEO, Carl Beech, contributes to a newspaper published by our friends at the Young Onset Parkinson's Network.

Are you our next Chair of Trustees?

Spotlight YOPD are beginning their search for a fantastic new Chair of our Board of Trustees.
A pair of letters to and from the Prime Minister

A letter from the Prime Minister

We wrote to the Prime Minister following the delivery of the Parky Charter.
A group of people standing outside 10 Downing Street, holding up the Parky Charter on big cards.

“Parky Charter” handed in to 10 Downing Street

Today a team from Spotlight met at 10 Downing Street as the Parky Charter was handed in.
Rear view of man standing on a pier next to a lake in stormy weather

Seven things to focus on as you navigate the early days of Parkinson’s

Being diagnozed with PD is a huge shock. To try to ease the journey I have put together a guide of 7 things to focus on as you navigate the early days of PD.

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