About Us

Spotlight YOPD aims to increase awareness and provide support to individuals impacted by Young Onset Parkinson's Disease. It is a charity specifically for those with YOPD, managed by individuals with YOPD. Our organisation is based in the UK but has a worldwide impact.

Shining a Light on Young Onset Parkinson's Disease

Spotlight YOPD was registered as a charity in January 2016. Our name is also our mission – to shine a light on the largely hidden rare conditions classed as Young Onset Parkinson’s.

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Providing support and resources

Parkinson’s is not one disease and there is not one single solution. We are realistic in believing that before we expect cures, we need to identify causes for the various types of Parkinson’s. As a charity with a global influence and reach, Spotlight YOPD is keen to share knowledge, putting equal weight on scientific research and patient experience.

We would also like to see more emphasis on preventative measures as well as a more holistic approach to helping people live better with the condition today. A personalised approach is required, enabling YOPDers to make the best decisions for themselves, their family, and their future. We believe in the power of partnerships and the patient voice. The YOPD community holds the key to a different approach.

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Looking ahead

In recent years, we have seen YOPD approach a tipping point… New YOPD charities from around the globe have appeared and are now singing from the same hymnsheet, if in their own language. We have lots we can learn from each other and much we can share. The best we will link to on this site.

Only now are patients and researchers working together in properly observing and trying to track disease progression, identifying presenting symptoms, discovering genetic links and much more.

Founded and still run by people with the condition, Spotlight’s aim has always been in the first instance to represent those people diagnosed with Parkinson’s under the age of 50. We hope to help them understand what YOPD is, how it and its many and varied symptoms may impact on their health, welfare and the future for them and their family.

While hope is very much the currency of YOPD and the power of positivity is undeniable – we seek to tell it like it is. No promises and no timelines for a ‘cure’ – we are all on a learning curve, including clinicians, neurologists, patients, partners and charities. We want to encourage patient involvement and different, creative approaches to solving the many issues that make up YOPD.

FAQs

Young Onset Parkinson’s Disease (YOPD) is a form of Parkinson’s diagnosed at around 50 or under. Our charity focuses on supporting those affected by YOPD through various programs and initiatives.

There are several ways to get involved with our charity. You can volunteer your time, make a donation, or participate in our fundraising events. Visit our Get Involved page for more information.

Donating to our charity is easy. You can make a one-time donation or set up a recurring donation online. Your contribution will help us continue our work in supporting individuals with YOPD.

If you or someone you know is living with YOPD and needs support, our charity is here to help. Contact us through our website or reach out to our support team for assistance.

We welcome volunteers who are passionate about making a difference in the lives of individuals with YOPD. Visit our Volunteer page to learn more about our volunteer opportunities.

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