Category - Diagnosed with Young PD
Main section – Diagnosed with PD. The three words ‘you have Parkinson’s’ are not the ones anyone wants to hear. For those diagnosed at a younger age, it’s likely to have taken some time even to get to that conclusion. Along the way there may have been tests, lots of well-meaning people reassuring you that you’re too young, possibly an operation or two to fix a ‘frozen shoulder’ and the bizarrely almost right but very wrong ‘it’s all in your head’.
How To Get The Help That’s Right For You..
People with PD can have myriad symptoms – both motor and non-motor. What’s right as treatment for one is not necessary right for another – and can even be detrimental. In the first instance make sure that you know the support available to you – and request whatever else you need.
Parkinson’s doesn’t discriminate – and nor does Spotlight YOPD. We are very conscious that there does not seem to be any specific service provision for the LGBTQI communities. Every person is a unique individual with their own PD symptoms. In a PD community dominated by elderly concerns, LGBTQI may feel like a misunderstood minority within a young Parkie minority. More than any other group they probably understand the impact on a family of breaking unexpected news.
In order to explore whether there is a need or a will to discuss non-heterosexual issues among LGBTQI Parkies, we are setting up an on online safe forum for this group. We believe the LGBTQI voices aren’t being heard in PD and other areas of disability. We want to know what people think might be helpful to change this. Please email us your thoughts.