On the day Tom Isaacs’ personal battle with Young Onset Parkinson’s came to an end this summer, more than a dozen young Parkies with their own battles to be fought met in the offices of PUK. Some were supporters of the main Parkinson’s charity in this country, founded the year after Tom’s birth. Others represented their own charities and organisations. Together we were the members of the Younger Parkinson’s Alliance.
Author - gaynor
Tom Isaacs, 2 April 1968 – 31 May 2017. Co-founder and president of The Cure Parkinson’s Trust A little over three months since the PD community was shaken to its core at the news of Tom Isaacs’ death, we take a moment to reflect not just on his life but his legacy. An Olympic torchbearer, Tom led and lit the way for those with YOPD; it’s up to us – all in the PD world – to now work together in getting better treatment and the cure.
*OK, so there will be a bit of a wait but, all going to plan, this will happen not just in your lifetime but in the near future. But don’t take our word for it. Here’s the view of a former neuroscientists… Jon Stamford has been studying PD for 37 years with an inside and outside perspective.
Ordinarily we’re all in favour of Young Parkies running their own home experiments to observe the effects on their PD and its symptoms. Here Simon Templar, not necessarily our writer’s real name, takes far too much of a gamble, even in his own view. Having lived to tell the tale, he recounts it here. It is published with a BOLD caveat…
Anyone who works in the medical field; specifically in the brain-business, will know of Neuroscientist Dr. Babak Kateb, Founding Chairman and CEO of the prestigious SBMT and Brain Mapping Foundation. Pat O’Brien of the acclaimed Business Rockstars introduced Dr. Babak…‘brain-mapping is what he does.’ Close enough, Lisa Vandeberg explains…
PD, by its very nature, is unpredictable. Julie Walker uses that ‘element of surprise’ to her advantage on the tennis court, having taken up the sport – almost by accident – post diagnosis. Here she serves her first article for Spotlight YOPD.